Outreach Coronavirus information

COVID-19 Pandemic

All people monitored by the HMDS Outreach service have a higher risk of COVID-19 illness as a result of their blood disorder. Some people on HMDS Outreach service are extremely vulnerable.

Please check your risk status and relevant guidance below. If you have a clinic appointment, please let them know about your risk category as they may need to make special arrangements.

We are continuing to send packs to patients for monitoring their blood disorder but are asking you not to have the blood samples taken during the pandemic unless we have told you that there is an urgent need. For health professionals, if a patient on the Outreach service requests a blood test at your practice during the pandemic, please contact us on 0113 20678151 and ask for Vicky or Andy, victoria.martin4@nhs.net or andy.rawstron@nhs.net .

Vulnerable or “at risk”

This is a large group of people who are normally at risk from the flu. People in this group should practice strict social distancing as a minimum. People on the HMDS Outreach service who are in the vulnerable “at risk” category usually have additional risk factors for COVID-19 illness including some evidence of immune suppression and so we have recommended that they follow the “high risk” extremely vulnerable guidance if this is possible.

You are in the vulnerable “at risk” group if you have one of the following diagnoses (the ICD10 code is used by the NHS to determine the risk category):

Monoclonal gammopathy of undetermined significance (MGUS)     ICD10 code: D47.2

IgM MGUS     ICD10 code: D47.2

The current NHS advice for people in this group can be found at https://www.nhs.uk/conditions/coronavirus-covid-19/advice-for-people-at-high-risk/

You may be in the extremely vulnerable “high risk” category if you have other relevant medical conditions.

Extremely vulnerable or “high risk”

This is a smaller group of people who should practice complete social “shielding”

You are in the extremely vulnerable “high Risk” group if you have one of the following diagnoses (the ICD10 code is used by the NHS to determine the risk category)::  

B-cell chronic lymphocytic leukaemia (B-cell CLL)     ICD10 code: C91.1

CD5+ LPD – intermediate phenotype     ICD10 code: D47.9

CD5-negative B-cell LPD NOS     ICD10 code: D47.9

Chronic myeloid leukaemia      ICD10 code: C92.1

Monoclonal B-cell lymphocytosis (CLL phenotype)     ICD10 code: C91.1

MYD88 mutated B-cell lymphoproliferative disorder or Waldenstroms      ICD10 code: C83.0/C88

Systemic marginal zone lymphoma     ICD10 code: C83.0

The current NHS advice for people in this group can be found at https://www.gov.uk/government/publications/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19

If you are in the extremely vulnerable “high risk” group but have only received a letter from HMDS Outreach and have not yet received a separate letter from the NHS please register at https://www.gov.uk/coronavirus-extremely-vulnerable or call 0800 028 8327.

Further support may also be available through https://www.myeloma.org.uk (for MGUS patients), https://www.cllsupport.org.uk (for MBL/CLL patients), or https://www.macmillan.org.uk (general advice)

Updated: 1-April-2020.